Welcome to the Ehlers-Danlos Awareness Project (EDAP) web page! Thank you for visiting our site! The purpose of EDAP is to educate and raise awareness
for Ehlers-Danlos Syndrome. Ehlers-Danlos Syndrome is a rarely diagnosed genetic connective tissue disorder where the collagen does not fully synthesize, making it weak. Collagen is located in the skin, joints, ligaments, tendons, blood vessels,
and organ walls. Faultiness of the collagen can lead to numerous other medical conditions and results in widespread pain. Those diagnosed with Ehlers-Danlos are known as "medical zebras".
Wondering what the meaning of the Zebra is to the EDS community? You are not alone! It comes from the saying "If you hear hoof-beats, assume a horse, not a zebra." In the medical communtiy, this saying is used in terms of diagnosing someone with a rare
condition, disease, or disorder. It has been adopted into the EDS community as the "mascot".
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